I have the results from the endoscopy & they are negative. That was going down through the mouth. They did find one little thing a hiatal hernia, that is a non issue & many people have them. It is nothing to worry about & doesn't need treatment.So glad to hear that Frank. I believe your positive frame of mind and your hard working attitude has helped. As you can see, your prayers are being answered.
So, the next deal is the radiation simulation 06/10/10. I may pass that story on, I think that's going to be a humbling experience. I'm still amazed I didn't have any polyps. I believe in the power of prayer.
It appears all I have to deal with is the prostate cancer.
I thank all of for your support!!!
Frank
I want to start out with this board gives me a place to vent & welcome & praise the the support I'm getting. I'm a little down right now with a friend said it's only cancer. A tear comes to my eye when i think of what I've done in helping with Ill. State. I forget his name Bingham or Bangham was huge for getting the tees ready. It's sad but in an instant all that work is history. Thanks again Dean Bingham, I know his name, Bangham is for his puts.Vent my friend! You have come a long way. Keep up the good work Frank! I am amazed at your ability to fight off the evil forces. When I pulled up at Illinois State and saw you weed whacking before the tournament, it made me smile. Your not going anywhere my friend! Your a fighter and a winner, and a World Champion!
Getting back to my point, I'm battling a high risk range of cancer. That level doesn't come from me it's from the doctors. That saddens me to think about dying. A friend mentioned it's only cancer. Well I'm at 8 with the top being 10.
That's a long way from one. I would think it's reasonable to think my situation is 24/7.
My guess is that it doesn't seem I'm struggling. I'm trying to do the mind over matter thing.
The bottom line for me is the prayers, Thank You!
You people are very important to me other than he idiot that said it's only cancer.
Frankie,Thanks Fool. I've noticed my spirits are up when I'm with my disc golf friends. It's encouraging to my attitude. It will be a while before I know for sure. The first report was good news & brings joy to me & family this holiday season.
I am really glad to hear that things are looking better. My whole family, myself included have been sending a lot of positive thoughts your way. I will pass this information on to everyone. Let me know if you need anything.
Jason
The importance of friends is priceless when battling thru the tough times in life and there's plenty to go around on this board. There's no way to describe how helpful the good comments and caring goes towards the process of healing. You people are all awesome!Known by his elders as Randy. That being me. I call him Jr. because that's relative.
:) Sr.
Thanks for sharing my joy Randy!PS I'm looking forward to the bitch'n,about the plants, although it may be a few years, along with many trees & shrubs that aren't obviously noticed.
When they took blood Friday 03/04, I asked if they could squeeze me in before my scheduled appointment.
Things are looking pretty good. My psa went from 0.36 to 0.13. My blood pressure has been trending up & so I'm taking a mild medication for that. My first hormone shot was 05/04/10, so I have another year of testosterone removal.
I celebrated by planting a tree at Channahon.
Thanks Everyone!
Yesterday, April 19th was my first year anniversary being diagnosed with prostate cancer. I don't like how I feel but I'm doing OK. I'm being proactive rather than reactive. I having a pft examine tomorrow, the 21st. Pulmonary function test. This is about shortness of breath. There is also a CT scan scheduled 04/27.Keep doing what your doing Frank! Keep that mind on a positive track. Your beating it and will continue to beat it. Love you my Brother from another Mother!
Prostate cancer is very curable, it's just that I have an aggressive form of it. I have a huge support group & thanks for that. That's a big deal!!!
I bumped into an old friend that's been following my process. He mentioned that there was some concern with his prostate & was following what was going on with me. His mind went into worst case scenario, but all his tests came back negative. So this is a good news update for those who don't see me often.Positives=Your winning my Brother!!!
I had an appointment with the GU Dr. & was complaining about the usual things, shortness of breath, being tired, urinating, weakness, no sex & went on about the loss of hair on the back of my shoulders & thinning on my arms & legs, & the new hair on the top of my head. In so many words he raised both hands in the air & yelled Yeaaah!!! the medication is working. He also suggested my psa will be lower than 0.13. If you don't already know, the medication, zoladex, removes my testosterone.
In getting another ct scan it was discovered I have a "substantially enlarged heart" from the prior scan. I had more tests & the only thing discovered was an "left artial enlargement" & it's just something to be watched.
So in my cancer fight, I'm doing good. The side effects appear to be normal. I haven't found anyone with my situation. Everyone I talked with has had their prostate removed. It make me wonder it I made the right decision. Thanks for your prayers & concern.
I have continued Good News! My psa is 0.02. Can you believe that? I'm doing numbers from memory, 13.82 was the start. After radiation & one or two implants, the number was 0.36, six months later 0.13, & now 0.02. The trend is dooown!!! Not much downside left. I get one more implant. I'll be on my own for three months, & six months from now I'll meet the GU & we'll see how I'm doing. I'm certainly not of the woods, but I see the sun shining brightly! I'm also not sure when I'll feel normal, but I'm super thrilled on numbers!I'm so glad for you Frank!! Your positive mind and ability to fight has rewarded you. I think many prayers are being answered for you my Brother!! It's hard sometimes but giving up isn't a option. I love your inspirational videos. I'm sharing one of mine with you.
[url]http://www.values.com/inspirational-stories-tv-spots/99-The-Greatest[/url]
It didn't make me laugh, but what an inspiration!I have continued Good News! My psa is 0.02. Can you believe that? I'm doing numbers from memory, 13.82 was the start. After radiation & one or two implants, the number was 0.36, six months later 0.13, & now 0.02. The trend is dooown!!! Not much downside left. I get one more implant. I'll be on my own for three months, & six months from now I'll meet the GU & we'll see how I'm doing. I'm certainly not of the woods, but I see the sun shining brightly! I'm also not sure when I'll feel normal, but I'm super thrilled on numbers!I'm so glad for you Frank!! Your positive mind and ability to fight has rewarded you. I think many prayers are being answered for you my Brother!! It's hard sometimes but giving up isn't a option. I love your inspirational videos. I'm sharing one of mine with you.
[url]http://www.values.com/inspirational-stories-tv-spots/99-The-Greatest[/url]
[url]http://youtu.be/Gc4HGQHgeFE[/url]
I met with my radiologist today & my numbers continue to be stable, Great news! To my disappointment, hormonal continues until 08/12. What she said is because of the aggressive type of cancer, it's two years after my last treatment. I just gritted my teeth. My hope was only one maybe two more. Unless you've been there it's difficult to communicate. My male hormones are being removed. Randy calls me lazy, but I tire easily.Lazy was mentioned one time and boy oh boy, big mistake! I'll never hear the end of it. I'll eat my crow. Awesome test results Frank! August is just a goal now. A Positive one my Friend. Good work!!!
I see the GU Doctor 12/19 & they have a wealth of information. If I can help anyone with my experience, please contact me.
I realize this is about how I'm doing with my aggressive prostate cancer & my struggle. I've been through a ton of broken bones & surgeries. Screws or wires in my foot, leg & & jaw, scares I can't remember & 28% of my body burned.Your right Frank. God has included me. And I am proud to include him. The way you are fighting through your high Gleason count is incredible and shows you are included. There's no secret. Believe and stay positive my Brother and things will be good. You have been a inspiration to me to keep on keepin on! And your right Frank, the disc golf nation is the best support group there is. Love them all!
This is about my liberal friend Randy Moore. Although many, I think the burns may be the burns may be the worse, extremely painful, maybe multiple surgeries on my wrist, doesn't matter.
Saying that,t I can only begin to realize what Randy has been going through. Pain, nine surgies, whatever, two lost fingers, Wheeeew!!! I think God is blessing Randy with his GREAT play relative to disc golf. Whatever supreme power you believe in, for me it's God, included Randy. He needs your love!
For me in 2012, it looks like another year of lazy production.
My disc golf friends are a joy to my heart!
I was reading the past posts & I hope you understand. First I'm stable, not like a disc, Patrick. Now it really is not without struggle, & I will whine, with the side effects from the medication, no spin, I believe I'm going to be just fine.Couldn't of said it better Frank. Positive mind over matter. Your kicking the cancers ass. Keep it up my Brother!
I just may not have sex the rest of my life. Not true with Randy Moore. My heart goes out to him, except when we play disc golf. He is in an unknown world, & I feel for him.
The positive is huge!!! I wonder how many believe that with their heart & soul? I think Fern thinks that way.
There are different levels of prostate cancer & mine is aggressive, because I waited. PMA is a big deal, & the more positive the better chance of success. You have to believe with your heart, mind & soul! I wonder how many have been there, regardless of the dealt cards?
FYI: Frank fell last night and is in the hospital with possible broken ribs. Get well soon Frank!I called Randy on the way to the emergency room. I could barely talk through the pain & I'm not admitted. They told me I may have cracked a rib, but nothings broken & my lungs are not punctured. The pain was unbelievable & I may have freaked Randy out. I think I was a little freaked myself. He certainly knows about pain!
This is a cancer update. I didn't think my PSA numbers could get lower but they did! The last two #'s were 0.02. Now it's 0.012. Unbelievable!!! There are some other concerns though, high blood pressure. At he primary care Dr. today the second time it was 165 over, I think it was 83. Anyway it's a concern & they doubled the doubled the pain medication I'm already taking, lisinopril. I'll go back in 30 days.What timing. A day before the Ice Bowl you get great news! Someone up above is looking down on you my Brother. Love the positives you install in me Frank.
What I expect for this year is more struggle, until I get off the hormonal therapy. Although with side effects, the drugs are working! Isn't that wonderful? I'm sure someone that reads this will get cancer & realize the mind game. I also want to point out with a Gleason score of 8, it is an aggressive form of prostate cancer. I'm doing fine though. 2013, here I come!!!
More good news! I wasn't going to post anything, but after talking to Randy, & then confirmed from Jesse & Jason, I decided to post. My PSA is not detectable! That's huge! In this process, I meet with numerous Doctors & nurses. I met with the radiologist Friday 06/22/12 & also learned my last hormone implant will be August 29th 2012. Hugh! That will be two years after my last radiation treatment. I meet with the GU Dr. July 6th, but I don't think it will be news worthy.The bumper sticker is right Frankie...FIGHT TO WIN!! And your doing it!
More good news! I wasn't going to post anything, but after talking to Randy, & then confirmed from Jesse & Jason, I decided to post. My PSA is not detectable! That's huge! In this process, I meet with numerous Doctors & nurses. I met with the radiologist Friday 06/22/12 & also learned my last hormone implant will be August 29th 2012. Huge! That will be two years after my last radiation treatment. I meet with the GU Dr. July 6th, but I don't think it will be news worthy.
"I've got to work on getting my energy back."So true Tafe. He's planning on a bench Thursday. Never ending love!
This coming from the man that puts more work into our courses than all of us AND the park districts combined!
Rock on Sodfather!
Well, I haven't heard this word apply to me, remission! I met with the radiologist yesterday, Jan. 11, & she uttered that word. The last two psa reading were 0.01 down from 13.82. It is awesome news!!! It can pop up again, but it's coming up to 3 years & everything is going in the right direction. Another step in this process is to have the hormone medication leave my system. I did not get a definite answer to that question, but in general a few months.It shows in your drives lately Frankie!
Thanks for the support, it's huge!!!
And you deserve it my Brother because you fought like no one I have ever seen fight that fight. Congrats.... me and my family are so happy for you Frankie! :)Well, I haven't heard this word apply to me, remission! I met with the radiologist yesterday, Jan. 11, & she uttered that word. The last two psa reading were 0.01 down from 13.82. It is awesome news!!! It can pop up again, but it's coming up to 3 years & everything is going in the right direction. Another step in this process is to have the hormone medication leave my system. I did not get a definite answer to that question, but in general a few months.It shows in your drives lately Frankie!
Thanks for the support, it's huge!!!
Well, I haven't heard this word apply to me, remission! I met with the radiologist yesterday, Jan. 11, & she uttered that word. The last two psa reading were 0.01 down from 13.82. It is awesome news!!! It can pop up again, but it's coming up to 3 years & everything is going in the right direction. Another step in this process is to have the hormone medication leave my system. I did not get a definite answer to that question, but in general a few months.
Thanks for the support, it's huge!!!
Well, there is more concern about my health issues. I have a small tumor on my brain. It perhaps came from my hormone treatments, but for now it's unknown. I need to meet with a neurosurgeon & we go from there. My Primary care Dr. went to both ends of the spectrum, surgery to nothing. I complained on my cancer visits & thus the MRI & then these results. Further tests will be coming. I'm passing on what my primary care Dr. told me. Keep chugging the good thoughts & Prayers!!!
Well, there is more concern about my health issues. I have a small tumor on my brain. It perhaps came from my hormone treatments, but for now it's unknown. I need to meet with a neurosurgeon & we go from there. My Primary care Dr. went to both ends of the spectrum, surgery to nothing. I complained on my cancer visits & thus the MRI & then these results. Further tests will be coming. I'm passing on what my primary care Dr. told me. I'm taking a deep breath & a sigh. Keep chugging the good thoughts & Prayers!!!Prayers are pouring your way Frank. We are all here for you and our love is with you!
A bomb was dropped on me two weeks ago with brain cancer. Needless to say I've been extremely anxious. Not being contacted by the neurosurgeon, & curious I picked up my records. I have a tumor in my pituitary gland, 1.2 cm, just under 1/2". Reading about it, says it's most likely noncancerous. That's huge! A pituitary tumor is an abnormal growth in the pituitary gland, the part of the brain that regulates the body's balance of hormones. I'm curious if the 2 1/2 years of hormone therapy relates to this tumor? It's interesting how fixing one problem, creates another. Randy Moore knows what I'm talking about.Anything you need Frankie just ask. Prayers are pouring your way my Brother. Your strength and spirit has carried me through some tough times and you will beat this just like all the other evils you defeated. Friends and family are so important and you are always there Frankie. :) You are amazing!
You're support is huge!!! Most will have their family & friends. I'm blessed with the Disc Golf community, plus my family & friends!!!
Thanks for asking Jesse. I'm feeling no worse than flat. It seems that I have a hormone dysfunction. I'm still getting hot flashes & meet with an endocrinologist Thursday. That's a hormone Dr. I'm not sure what's up with the brain tumor. My guess is the side effects are minimal like slight headaches, so it's not of great concern at this time. Something is going on, I hope we can find it & treat it.Jesse, Frank is one of the most positive Human Being I have ever met and I feed off his energy. He will beat this tumor because that's who he is. Frank is such an inspiration we can all learn from....I know I have.... Pray on!
Regardless of the bumps in the road, I'll be moving forward, Randy Moore is watching me ;)
Have the doctors looked at menopause for the hot flashes? Ha. Just kidding. Glad to hear that you're keeping your spirits up.Thanks Tafe, it is a battle. Great news for your Dad!!!Part of what the hormone treatments did was take away my testosterone & my body hasn't replaced it. Because of the nature of my cancer I can't take anything to replace it. So, I'm a bitch with mood swings & hot flashes. :) That's OK, so far I'm wining the battles.
On a side note, I have an update for you with my dad's prostate cancer. 6 1/2 months ago his PSA had skyrocketed to 29.5. The proctologist put him on a chemo pill, bicalutamide or something. Last week he was tested again and his PSA is now 0.25!! I guess the stuff is working. Although it seems to be messing with his hormones as well. It seems the chemo messesup testosterone levels.
But he is ecstatic at the PSA.
Keep trucking on!!!
The Legend of Paco GrimesThat's really awesome!!! Thanks!!!
As you all might know Frank just had surgery on his head. Everything went well and once again Paco kicked ass! I heard he woke up looking for his chainsaw & weed whacker.
Everyone has been praying for you and we hope you have a quick smooth recovery.
We love you Paco!
I left something that's important about the nose plugs/patches. If they don't hold, I have two hrs. to get t a hospital. The patch is holding the cerebral spinal fluid (CSF) So I need to be careful.The Legend of Paco GrimesThat's really awesome!!! Thanks!!!
As you all might know Frank just had surgery on his head. Everything went well and once again Paco kicked ass! I heard he woke up looking for his chainsaw & weed whacker.
Everyone has been praying for you and we hope you have a quick smooth recovery.
We love you Paco!
Here's what happened. I had a pituitary tumor (brain) removed. What they did drill through my nasal passage into my skull & removed the tumor. They patched the holes & packed the nostrils. I can't breath through my nose, so I eat with my mouth open, until Mon. they take it out. Its a delicate surgery & took a little over 4 1/2 hrs. They're are nerves & arties around that area. What I need to be careful of is blowing the nose plugs, or the stitches used in the patch. I need to be careful putting pressure on that area. It's been relatively pain less. I'm shocked about that. They gave me 60 oxycodone for the pain.
A couple more. I know its prob alot, just putting it out there. These are more natural therapies that dont use MMJ.Who is the chainBanger?
[url]http://gerson.org/gerpress/the-gerson-therapy/[/url] ([url]http://gerson.org/gerpress/the-gerson-therapy/[/url])
[url]http://www.budwigcenter.com/[/url] ([url]http://www.budwigcenter.com/[/url])
Let me know when you ready for some Famous Dave's Barbecue. I'm buying!Yum!!! It may be a little while. Although the nose packs are removed, my smell & taste is not there. I'm looking forward to it brother. ;)
:)
Well, I haven't heard this word apply to me, remission! I met with the radiologist yesterday, Jan. 11, & she uttered that word. The last two psa reading were 0.01 down from 13.82. It is awesome news!!! It can pop up again, but it's coming up to 3 years & everything is going in the right direction. Another step in this process is to have the hormone medication leave my system. I did not get a definite answer to that question, but in general a few months.
Thanks for the support, it's huge!!!
Thanks ChainBanger, & by the way, the brain tumor is not cancerous. I would like to talk with you.Well, I haven't heard this word apply to me, remission! I met with the radiologist yesterday, Jan. 11, & she uttered that word. The last two psa reading were 0.01 down from 13.82. It is awesome news!!! It can pop up again, but it's coming up to 3 years & everything is going in the right direction. Another step in this process is to have the hormone medication leave my system. I did not get a definite answer to that question, but in general a few months.
Thanks for the support, it's huge!!!
Finally got a chance to read all 9 pages. I wanted to congratulate you on this post, even though its very late. ;D
Glad to hear that. I have been busy on Tuesdays lately, but plan to be there next week. Will you be out there tonight?No, Tim Murray is filling in for me on Tuesdays. I will be at the Dellwood Grand Opening, at least at the start. Also at the Channahon Classic, if that works for you.
Thank You for your service Frankie.... Have a great Veterans Day!Thanks Randy! It makes me proud to be a Vet.
Happy Veterans Day Frankie and to all the Veterans! :)Thanks Randy, it means a lot! I was in a Veterans Day parade. I've been thinking, maybe we could do another bench next year.
Sounds good, we need trees, going to look empty pretty soon, they got hole 4, soon 14 I would imagine. Going to be a long winter.Happy Veterans Day Frankie and to all the Veterans! :)Thanks Randy, it means a lot! I was in a Veterans Day parade. I've been thinking, maybe we could do another bench next year.